Wednesday, January 28, 2009

... just a note ...

I read this today, and It really hit home with me.
It is something that I will now keep with me, as it is so true...

" Life is too short to wake up with regrets - so love the people who treat you right, forget about the ones who don't, and believe that everything happens for a reason "


Until next time... Eat chocolate... (yes you, because it is too bloody hot here unfortunately it just melts in your hands, so eat some for me!)

~ Amelia xoxox

Tuesday, January 20, 2009

Some Uplifiting Lyrics, and Tips...

So a good friend of mine, brought to my attention a song by Delta Goodrem called "Be Strong".

Now as some of you may, or may not, know Delta was also diagnosed with Hodgkins Lymphoma when she was my age. So for me to see some one like her, get through it all, and acomplish everything she has since her treatments is simply amazing. And it is a huge force that drives me to believe that all will be well again :)

Since I loved this song so much, when it came out, and as it is even more appropriate now. I want to share it with you all. And yes I can relate to what she is saying, and where she is coming from... Trying to stay strong is hard at times, but having all the constant amazing support that I have from all you wonderful people, helps me get through all the "darkest hours", and remember that I am "not alone".

Be Strong, By Delta Goodrem.
Songwriters: Benenate, Bridget; Gerrard, Matthew; Goodrem, Delta
Lyrics from http://www.deltagoodrem.com/lyrics/home.do?catalogueNo=5189153000&affiliateId=0510&side=1&seq=6&lyricId=2131.


Are you swimming upstream in oceans of blue?
Do you feel like your sinking?
Are you sick of the rain after all you've been through?
Well I know what you're thinking
When you can't take it
You can make it
Sometime soon I know you'll see
'cause when your in you're darkest hour
And all of the light just fades away
When you're like a single flower whose colours have turned to shades of gray
Well hang on and be strong
Where taking each step one day at a time
You can't loose your spirit
Let live and let live forget and forgive
It's all how you see it
And just remember keep it together
Don't you know you're never alone
'cause when you're in your darkest hour
And all of the light just fades away
When you're like a single flower whose colours have turned to shades of gray
Well hang on, and be strong
No you're not defeated
And soon you'll be smiling once again
Then you won't have to feel it
Let it go with the wind
Time passes us by And know that you're aloud to cry
'cause when you're in your darkest hour And all of the light just fades away
When you're like a single flower whose colours have turned to shades of gray
Well hang on and be strong
Now I know this may be a little late in getting you to you all... but better late than never.
When I was reading the "Been There, Done That" Book, written by Young People with Cancer, for Young People with Cancer, By CanTeen.. I came across a wonderful section called "Helpful Tips for your Friends" ! :)
Now I know some of you don't know what to say at times, and have questions to ask etc. So from me to you, here are some Tips.
(Sorry if I am offending anyone by putting these up... not my intention at all!)
Sometimes it is hard to understand what your friend who is living with cancer is going through. Your friend’s cancer experience may be the first time you have had to confront terminal illness and the fear of loss. Knowing how to come to terms with what is happening may take time and good communication with your friend. We have put together some info told to us by young people such as your friend, so that you can still be there for your friend who is living with cancer.
Tips:
  1. Understand that cancer is only a part of my life
  2. Don’t be afraid to ask hard questions….I will answer them if I want to, and if I can. And if I don’t…then I won’t!
  3. If I am confused or frustrated, help me to find out what I want or need and how best to go about getting it.
  4. I don't want to go into hibernation! I want us to keep discovering new things together like new books, movies and places to visit.
  5. Come and hang out with me for a day at the hospital while I am having treatment, or at Home.
  6. Email me, text me or call me as much as you like. I get bored and lonely so contact me as much as you can. And don't worry about bothering me... If I am feeling gross, or I am not in the mood to talk, I just won't answer.
  7. Enlist other friends to visit or call me regularly
  8. If my sibling or my family member is away and I am home alone, give me a call and invite me around for dinner. Sometimes dinner isn’t really a priority and we just don’t get around to it!! It is also great to just get away and relieve some of the stress.
  9. If you ask me "how I am feeling?" and I say "Fine", beware!! Just remember that FINE can mean Freaking out, Insecure, Neurotic and Emotional. What I am thinking is I am not fine: I have Cancer. I am avoiding talking about it because "if we don't talk about it we don't really have to face it. And if we don't face it, we don't have to deal with it. And if we don't have to deal with it, it won't bother us. Right?" Wrong!! As my friend(s) you may be thinking "I don't want to make my friend feel bad by talking about it". But I might want to talk about it. I might need to talk about it. And if we don't talk about it, I am left thinking about it all on my own.
  10. I often lie awake at night thinking and worrying. If you don't mind taking phone calls, or Texts in the middle of the night, let me know.
  11. Cry with me, laugh with me, and listen to me. Sometimes there's no need for words.
  12. Help me to have fun. In the beginning, and for many months to come, I may feel that the world revolves around cancer.. trust me, I will need an escape. We can go out for a meal, take a picnic and a walk together, or go to see a movie or get take-out and watch some DVDs.
  13. Be my friend and support me through all the stages of cancer. A lot of friends and family will be around at the beginning, but providing support and over the long haul is necessary.
  14. Try and be the consistent friend I know I can rely on!

I hope all that helps a little, and sheds a bit more light on some situations.

Many of you have been fabulous, and I wouldn't be as strong, positive and upbeat as I am now, if it wasn't for you!

I THANK YOU WITH ALL MY HEART!!

Untill next time.. Eat Chocolate...

~Amelia xox

Thursday, January 15, 2009

Officially Halfway...

This week has been a very busy, yet awesome week (so far) :)


On Monday, I went to the Monash Medical Centre to get a CT Scan and a PET Scan. Now, as I am Halfway through Chemo Treatments, they obviously have to see how well it is going, and what is happening, so they can adjust the chemo accordingly. Hence the scans. (you might want to glaze over the next couple of paragraphs... i go into detail about 'scientific medical' things :P)


The PET Scan and CT Scans' are not painful (Usually, yay).. but you do have to get injections. Some tech nurses (like the one I had) can not inject properly, and leave you with a bruise from the needle. Not good. Yes this happened to me... and why when you see my I have my PICC (Peripherally Inserted Central Catheter) line, which is inserted 24/7 into my arm. Just look at the link for more details. They couldn't use the PICC line for the Radioactive Glucose they had to inject me with, because they are 'delicate' and therefore should only be used for Chemo, and withdrawing blood.


So yes, the PET Scan requires you to be 1) injected with Radioactive Glucose, 2) lie down for an hour while the RG spreads through out your body and into the tumours, as much as possible. You have to lie as still as you possibly can. 3) lie on a hard plastic board, while the 'radiographers' slide you in and out of the machine from there perches in the little room next door with the glass window. 4) Lie on the board, with your arms above your head, as still as possible for the whole 1.5 hour test. 5) Did I mention you can not be wearing any clothes, besides a medical gown, and no metal? So time consuming!!


The CT Scan on the other hand, 1) you have to drink about 1 litre of 'contrast' solution before entering the test. 2) lie on a similar hard plastic board, while the radiographers slide you in and out of a similar machine to the PET Scan. 3) Lie in exactly the same position, with your arms above your head. 4 ) be injected with some form of 'contrast' to the stuff you had to drink... and do some more sliding for an hour. Again, Time consuming. So as my appointment was at 0930, I did not leave MMC until 1400... that's 4.5 hours of tests!!!


(please join back into the blog now.. medical things should have finished by now...)


So i had tests.. big whoop i here you say...
we yes in theory... but not when you hear the results!! Now this is a perfect reason to have a blog! :) So it can be 'shouted out to the world' as i said i wanted to do.


Well, the PET Scan came back NEGATIVE!!!!!! Which means that there is an UNDETECTABLE amount of active Hodgkin's Lymphoma Cells left in my body! :D Just for reference 'undetectable' is about 80% of the cells, so I still have to go ahead with the next 3 months (6 sessions) of Chemo to make sure the cancer cells have gone as much as possible. (DIE YOU STUPID, HORRIBLE CELLS!!) The CT Scan also showed the small(er) tumours in my Neck, and Abdomen, have completely shrunk and disappeared, while the main tumor (of original size 20cm) has shrunk to 11cm, and will mostly be Scar Tissue. It will also continue shrinking over the next 3 months. :D


This is all EXCELLENT NEWS!!!! And had me jumping for joy, spinning in circles, wishing i could celebrate! Just you wait.. in 3 months when I am party-ing it up, and able to drink champagne again (IE less tired, and don't have 10000000 drugs floating around in my system) I will be doing just that.. in STYLE!


So as of now (well Tuesday 13/01/2009) Amelia Fuller is OFFICIALLY IN REMISSION!
What a way to start 2009! :D
There is not much, if anything, that can beat hearing news like that!


Even writing this blog right now, makes me want to celebrate.. I am now in search of Chocolate in the house.. I will find some, somewhere!


Until next time... Eat Chocolate...


~ Amelia xox

Sunday, January 11, 2009

It's 2009...

Wow, it's 2009 already...


Before I move on to 2009, I should do the 'New Year' thing and reflect on 2008...
So here goes – 2008:

- 19th Year of my Life

- 1st Year Uni – Bachelor of Science, at Deakin University Burwood

- Work – Kmart & KADAC (Including multiple Expos)

- Easter at Eildon

- Trip to Jervis Bay to visit a Friend

- Uni Ski Trip to Mt. Hotham

- The end of a 1 year and 3 month Relationship – Good on us for lasting that long! :)

- Death of Uncle Greg, Great Uncle John and Hana Chan

- One of my Best Friends visiting from England

- 2 weeks in Hospital

- Diagnosis of Hodgkins Lymphoma (IIIB)

- Battling through Chemotherapy treatments every 2 weeks

- Drama’s of Boys, and Friends

So all in all, 2008 was pretty SHIT! Bring on 2009!


Ok… so 2008 wasn’t the best year I have had. It is certainly down the bottom of the “Best Year” List. But that does not mean that I didn’t have fun. During the year there were many, many great times with Friends and Family which I hope will continue into 2009 and beyond. I just hope that 2009 does not have as much tragedy as 2008 did. So as a ‘New Year’s Resolution’ of sorts, I have started this blog… Thanks to the few suggestions I received from friends. It will be a way to document my ‘Life, Drama and Chocolate’ and share with you all my Random-ness :P Joy!


I am extremely grateful for all the Love and Support that I have received this year, and especially over these past few, hard and trying months. You have all helped me to remain positive, strong, and not give up! :) A HUGE shout out to those who have been there for me through it all.. You know who you are! P.s GO Team Chemo! Moo!


May 2009 let you achieve all that you want, as well as Happiness, Joy, Love and Friendship


Until next time… Eat some Chocolate


~ Amelia xox